EB RESOURCES

Debra.org provides free programs and services to the EB Community in the United States and fund the most innovative research directed at symptom relief and a systemic cure.

EB Info World is a blog dedicated to Epidermolysis Bullosa information and awareness.

The EBCare Patient Insights Network (PIN) amplifies the voice of patients to help researchers and drug developers find better treatments, faster. Register now to become part of a research-ready PIN with participants from around the world.

Cure EB (formerly Sohana Research Fund) is dedicated to finding effective treatments and a cure for Epidermolysis Bullosa. It was set up in 2011, by the parents of Sohana Collins, a young child with a severe form of the condition.

Bringing together the world's experts to share state-of-the-art information and knowledge on Epidermolysis Bullosa.

Presented by AdaptHealth Patient Care Solutions to support the Epidermolysis Bullusa Community.